If you did not manage to join the Rallying to the Challenge meetings, or could not attend for the whole event, the recordings are now available to watch
Date and time | |
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Thurs. 7 October 9.00am EDT 2.00pm BST | Welcome and opening comments Shaun Hindley, Team Spark |
9.05am EDT 2.05pm BST | From genetic risk to the clinic – or, from peas to pills Dr Kevin McFarthing Where can patient involvement really add value? Dr Soania Mathur, PD Avengers Discussion – Where can you help on the journey? |
9.45am EDT 2.45pm BST | Data collection: concerns and opportunities: survey findings Dr Leah Mursaleen (recap) |
9.55am EDT 2.55pm BST | ‘Stretch and Move’ – with thanks to the Davis Phinney Foundation |
10.05am EDT 3.05pm BST | What are LRRK2 and GBA Parkinson’s: An overview Dr Laurie Sanders |
10.25am EDT 3.25pm BST | A personal story: Carrying LRRK2, my research involvement journey Jessi Keavney, PD Avenger |
10.55am EDT 3.55pm BST | ‘Stretch and Move’ – with thanks to the Davis Phinney Foundation |
11.10am EDT 4.10pm BST | The value of LRRK2 and GBA research: why are they important therapeutic targets? What is the potential benefit to the broader Parkinson’s community? Dr Simon Stott, Cure Parkinson’s |
11.30am EDT 4.30pm BST | The pipeline of genetic clinical trials Dr Richard Wyse, Cure Parkinson’s |
11.55am EDT 4.55pm BST | Live Q&A |
Date and time | |
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Friday 8 October 9.00am EDT 2.00pm BST | Welcome and opening comments Shaun Hindley, Team Spark |
9.05am EDT 2.05pm BST | Drug discovery for genetic forms of Parkinson’s in clinical trials ** Marc Van Grieken (Dundee Research Interest Group) interviews Dario Alessi, Miratul Muquit and Esther Sammler |
10.05am EDT 3.05pm BST | ‘Stretch and Move’ – with thanks to the Davis Phinney Foundation |
10.25am EDT 3.25pm BST | The Need for a YOPD genetic registry and the efforts to create one Gaynor Edwards, Spotlight YOPD |
10.35am EDT 3.35pm BST | Clinical Trials and Research, where does Africa fit in? Omotola Thomas, Founder Parkinson’s Africa with Rachel Agwu, Parkinson’s Africa, based in Nigeria with Dr Mie Rizig UCL London |
11.10am EDT 4.10pm BST | Q&A: Your questions answered Professor Patrik Brundin, Dr Camille Carroll, Dr Simon Stott, Marc van Grieken |
11.30am EDT 4.30pm BST | |
11.20am EDT 4.20pm BST | PD Avengers: Larry Gifford highlights the impact to date and activities and where future support is needed |
** Key Facts and Supplementary Information – Drug discovery for genetic forms of Parkinson’s in clinical trials
Below is a transcript from Marc Van Grieken’s interview with Professor Dario Alessi, Professor Miratul Muquit and Dr Esther Sammler.