As a member of the ‘Hope’ Council, you’ll help shape the future of Parkinson’s research and advocacy by sharing your experiences and insights. Your voice will ensure that research materials, clinical trials, and communications are impactful for the Parkinson’s community.

Together, we’ll inspire others to get involved, improve the way research is shared, and advocate for patient-focused policies that drive progress toward better treatments and a cure. 

Your voice will ensure that research materials, clinical trials, and communications are impactful for the Parkinson’s community. Together, we’ll inspire others to get involved, improve the way research is shared, and advocate for patient-focused policies that drive progress toward better treatments and a cure. 

What you’ll do as a Hope Council member

  • Review and improve research materials: helping to make research materials easy to understand by reviewing things like trial information and consent forms. Give feedback to ensure communication materials are clear and accessible to the Parkinson’s community. 
  • Help shape clinical trials: Take part in focus groups to share your perspective and ensure trials address the real needs of people with Parkinson’s. Offer ideas to improve recruitment strategies so trials are more inclusive and accessible. 
  • Be an advisor: Work with research committees to bring the voice of the Parkinson’s community into key decisions. Share your experiences and insights to make sure research priorities align with the needs of the community. 
  • Engage and inspire: Use your story to show the impact of research and encourage others to take part in trials, surveys, and focus groups. Join events, webinars, or panels to connect with others and amplify the work of Cure Parkinson’s and the importance of participation in research.  
  • Advocate for change: Support initiatives like Change the Future by advocating for policies that accelerate progress in Parkinson’s research and treatment. 
  • Help improve the trial experience: Review trial results and help present them in ways that are accessible and meaningful for the Parkinson’s community. Advise on initiatives to ensure they reflect the real needs of people with Parkinson’s. 

We’d love to hear from you if you: 

  • Have lived experience of Parkinson’s and want to make a difference. 
  • Feel passionate about research and advocacy. 
  • Enjoy sharing your perspective and engaging with others in discussions, panels, or focus groups. 
  • Are interested in making research and trials better for the Parkinson’s community. 

How we’ll support you

We’ll give you everything you need to feel confident and supported in your role, including: 

  • Briefings and guidance on research materials, trial processes, and advisory responsibilities. 
  • Training opportunities to build your confidence and skills. 
  • Ongoing support from the advocacy and communications teams. 
  • Access to resources and materials whenever you need them. 

Time commitment

This is a flexible role that can work around your schedule. Activities may include regular advisory meetings, focus groups, or occasional events and reviews, depending on your availability. 

Joining the Hope Council is an opportunity to use your voice and experiences to drive meaningful change, inspire others, and contribute to a brighter future for the Parkinson’s community. 

Sign up now and be part of the change for a cure.

Sign up