Help shape research
If you are living with Parkinson’s and are interested in research, you have the key skills needed to contribute to shaping research.
Cure Parkinson’s was founded by four people living with Parkinson’s and the experiences and insights of people living with the condition continue to inform our work.
We involve people with Parkinson’s in reviewing and evaluating grants, in shaping studies, in evaluation of drug and research questions. We have worked with individual research teams to recruit people with Parkinson’s to their advisory committees, and we have run patient public involvement (PPI) workshops for specific studies.
Research collaborations
World Parkinson Congress
The triennial World Parkinson Congresses provide an international forum for basic scientists, clinical researchers, health care professionals, people with Parkinson’s and others to come together under one roof to discuss, learn, and engage in debate around the latest scientific discoveries, medical and comprehensive care practices related to Parkinson’s.
‘Rallying to the Challenge’ – led by people with Parkinson’s
Our annual Rallying to the Challenge meeting, hosted in association with Van Andel Institute, is designed for and by people with Parkinson’s, advocates and care partners to explore how the Parkinson’s community can impact and accelerate research directly from the scientists carrying out this exciting work.
PD Avengers – a global alliance of Parkinson’s advocates
The PD Avengers is a global alliance of people with Parkinson’s, partners and friends who are standing together to demand change in how Parkinson’s is seen and treated; and using their combined influence and skills to build a sense of real urgency to end the disease.
In partnership with the authors of the book “Ending Parkinson’s Disease”, find out more about joining this proactive group at pdavengers.com.
Improving inclusion of under-served groups in clinical research: Guidance from INCLUDE project
This NIHR guidance summarises what an under- served group is, provides a roadmap suggesting intervention points to improve inclusion and gives examples of under-served groups and barriers to inclusion. It then provides a suggested framework of questions to guide the deliberations of funders, researchers and delivery teams as they design and assess clinical research proposals, and ends with examples of good practice and other resources to guide teams seeking to engage with, and improve inclusion of, under-served groups in clinical research.
Attend a Cure Parkinson’s research meeting
aCure Parkinson’s hosts regular Research Update Meetings to keep you informed about the latest Parkinson’s Research.
PD Avengers ‘Sparks of Experience’ – no one knows your condition better than you!
Find out more hereThe research committee of PD Avengers needs your help to develop Sparks of Experience. They want to collect all sorts of Parkinson’s thoughts and experiences from around the globe and highlight them to researchers and funders. Your experiences could provide the inspiration for a new direction for research and that so far elusive key to unlocking the mystery of Parkinson’s.
If everyone with Parkinson’s were to communicate their experiences of living with Parkinson’s; if everyone participated in clinical trials; if everyone took the time to become more knowledgeable and was more committed to partnering the scientific community in the search for new treatments, then there is no doubt in my mind that progress can be accelerated in Parkinson’s research.
Tom Isaacs, Late President and Co-founder, Cure Parkinson’s