Find research studies recruiting
Other studies recruiting
The ARDAT project
The Accelerating Research & Development for Advanced Therapies, or ARDAT, project is looking to recruit several individuals who might have a rare genetic condition or be a parent/carer of someone with a rare genetic condition to join their patient and public involvement and engagement (PPIE) advisory group. ARDAT is a consortium of international experts and industry leaders whose goal is develop tools and resources to aid in the development of cell and gene therapies. If you are interested in participating, please register your interest using the survey link below.
Register your interestThe PALOMA study
The Virtual Clinical Trials Center (VCTC) is looking to recruit 100 people with Parkinson’s to participate in their PALOMA study, which is investigating whether measuring eye movement can be better method for detecting and monitoring disease progression. The study will last one year (with recruitment closing April 2024), and participants will be asked to visit the study team five times (once every three months) to complete eye movement tests, clinical assessments for Parkinson’s and discussion of personal and medical information. If you are interested in taking part or would like to find out more please email the team.
Contact the study teamMeeting patient needs: a new study of treatment options
Were you or a loved one diagnosed with Parkinson’s disease five or more years ago? A new study funded by The Michael J. Fox Foundation for Parkinson’s Research and supported by Cure Parkinson’s, wants to hear how you think about treatments.
Find out more hereThe LEARN Study
Were you invited to take part in a trial of cell or gene therapy? If so, we would like to talk to you. The LEARN study (Listening to the experiences of participants from neurosurgical trials) is funded by Cure Parkinson’s and is concerned with how taking part in clinical trials for Parkinson’s involving brain surgery affects the people who take part. We would really like to speak to people who took part or made a decision not to take part in any cell or gene therapy trial and those who wanted to but were told that they could not. Taking part in the LEARN study will involve a conversation via Zoom to discuss your experiences.
Please email the teamThe Predict-PD Study – an online study
PREDICT-PD is a ground-breaking project using simple tests to identify people at high risk of Parkinson’s disease before the symptoms appear. If we can predict who is going to get Parkinson’s, we will soon have treatments for those in the early stages that could slow or prevent the condition progressing.
Find out moreEJS ACT-PD – A call for people with Parkinson’s and care partners to contribute
EJS ACT-PD are looking for people with an interest in research to form a wider patient and carer/partner network. Members of this network would agree to be contacted by the EJS ACT-PD team with requests for input when they arise. The range of input requested from members will vary but may include being asked to complete online surveys.
Find out morePD Nexus – an online study
PD Nexus is supporting research efforts for Parkinson’s through remote participant screening, genetic testing and counselling, education in Parkinson’s disease genetics, travel coordination, digital applications, study adherence, tissue procurement and distribution, and more.
Find out moreQMAP-PD
QMAP-PD is an ongoing study using advanced brain imaging techniques based at the Wellcome Centre for Human Neuroimaging, UCL. The aim of this work is to better understand the causes of variability between individuals with a common disorder called Parkinson’s disease
Find Out MoreMobilise-D
Mobility – how well we walk – is an important marker of health; a slow walking speed is associated with greater mortality, morbidity, cognitive decline, dementia, and fall risk. Mobilise-D will develop a comprehensive system to monitor and evaluate people’s gait based on digital technologies, including sensors worn on the body. The Mobilise-D results will help to improve the accurate assessment of daily life mobility in clinical trials and patient treatment, thereby contributing to improved and more personalised care.
Find out more about taking partUnderstanding depression in Parkinson’s
Dr Harry Costello, a Neuropsychiatrist and Clinical Research Fellow at University College London, is interested in identifying the role of the brain chemical dopamine in depression in Parkinson’s and understanding how depression in Parkinson’s differs from that of the general population. This research could help pave the way for new approaches to treat depression in Parkinson’s.
Find out moreThe Biogen Reason study
Open to people with Parkinson’s who carry the LRRK2 gene and also those without any verified Parkinson’s-related genetic variant; testing the drug BIIB094
Find out more hereOther research study websites which might be of interest:
The Hope List
The Hope List is compiled by Dr Kevin McFarthing about projects to develop new therapies for Parkinson’s. Originally a PhD biochemist, Kevin’s career included R&D leadership positions in life sciences research products, diagnostics and consumer healthcare. He is joint editor of the Clinical Trial Highlights section of the Journal of Parkinson’s Disease and a member of the Research Committee of Cure Parkinson’s. Kevin was diagnosed with Parkinson’s in 2012 at the age of 55.
There are two groups within The Hope List: research and clinical.
The research projects are broken down by phase (discovery and pre-clinical); whether the potential therapy is aimed at modifying the course of Parkinson’s (DMT) or to relieve Parkinson’s symptoms (ST); and the type of therapy being developed.
Fox Trial Finder
Fox Trial Finder is a user-friendly online matching tool from the Michael J. Fox Foundation for Parkinson’s Research (MJFF) which helps you find observational studies and clinical trials in your area.
Fox Insight
Fox Insight is an online clinical study building a large, diverse cohort of people with Parkinson’s and age-matched control volunteers to provide the research community with critical insight into the lived experience, genetics and variability of Parkinson’s.
ClinicalTrials.gov
ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world.
PDTrialTracker.Info
The goal of PDTrialTracker.info is to provide Parkinson’s patients, families, researchers, health care providers, and other interested members of the PD community with analysis of ongoing PD clinical trials and observational studies throughout the world in order to:
- understand the types of trials underway and where they are in the pipeline,
- highlight the most promising avenues of research (e.g., particular disease modifying therapies, symptomatic treatments)
- uncover roadblocks in the trial process and ways to address them (e.g., improving recruitment methods, enhancing clinical trial best practices),
- promote accurate and timely sharing of trial information for ongoing and completed trials (e.g., within ClinicalTrials.gov),
- facilitate greater collaboration between Parkinson’s patients, families, researchers, and physicians to accelerate progress towards a cure.
Parkinson’s UK
If you are in the UK you can visit the Parkinson’s UK website for help with finding research studies recruiting.
The NIHR – Be Part of Research Campaign
If you are in the UK, ‘Be Part of Research’ can help you find out about health and social care research that is taking place across the UK.